The IDD Toolkit website provides information for the primary care of adults with intellectual and developmental disabilities. The Toolkit offers health care providers best-practice tools and information regarding specific medical and mental and behavioral health concerns, including resources for patients and families.
Watch this brief video highlighting updates (2024).
APPROACHES TO CARE
- Communicate CARE
- Decision-Making: Promoting Capabilities
- Informed Consent
- My Health Care Visit
- Genetic Assessment Frequently Asked Questions
- Adaptive Functioning and Communication
- Psychological Assessment
- My Hospital Form
- About My Health [Surrey Place]
- Health Care Transitions [Surrey Place]
PHYSICAL HEALTH
HEALTH WATCH TABLES
- Autism Health Watch Table
- Down Syndrome Health Watch Table
- Fetal Alcohol Spectrum Disorder (FASD)
- Fragile X Health Watch Table
- Prader-Willi Health Watch Table
- Williams Syndrome Health Watch Table
- 22q11.2 Deletion Syndrome Health Watch Table
MENTAL AND BEHAVIORAL HEALTH ISSUES
- Initial Management of Behavioral Crises
- Identifying Symptoms and Signs of Mental Distress
- HELP with Emotional and Behavioral Concerns
- Risk Assessment
- Emergency Room Stabilization Protocol
- Crisis Prevention and Management Plan
- My Coping Tool
- Antecedent-Behavior-Consequence (ABC) Chart
- Psychotropic Medication Review
- Mental Health Interventions
- Crisis Debrief Conversation [Surrey Place]
REFERENCES
RESOURCES
These tools, except for Autism table and updates to the Down Syndrome Health Watch Table, were developed by the Developmental Disabilities Primary Care Program (DDPCP), Surrey Place, Toronto, Canada, funded by Ontario Ministry of Community and Social Services and Ontario Ministry of Health and Long-Term Care, Surrey Place, and Surrey Place Charitable Foundation. The DDPCP published Tools for the Primary Care of People with Developmental Disabilities to complement the Primary care of adults with developmental disabilities: Canadian consensus guidelines. All tools © 2023 Surrey Place. Adapted for use in the U.S. by the IDD Toolkit Project.