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Identifying the opportunities and challenges of using
Big health data refers to the ability to gather and analyze large quantities of information about health, wellness and lifestyle. Big health data includes information from health care providers as well as data from sources such as apps that track our sleep and exercise habits and the purchases we make.
Doctors, healthcare organizations, insurance companies, financial service providers, product and service companies, and governments at every level are keen to use such data.
Increasing the use and sharing of data could enable better diagnoses, more targeted prevention and treatments, faster research and cures, the creation of new tools to help us make healthier choices, and economic growth from the creation of health data businesses.
The collection, sharing, and use of big health data could reveal sensitive personal information over which we have little control. This data could be sold without our consent. It could be used by entities for surveillance or discrimination, rather than to promote well-being.
The ideas below are opportunities and challenges arising from the greater use of data in healthcare. AARP wants to know what you think about how health data should be used and protected.
Share your opinions and help us learn the priorities of people 50 and older when it comes to big health data. We will use this information to inform our thinking and to serve as the basis for developing solutions that can address challenges and take advantage of opportunities.
You will be presented with a series of two-option questions. Tell us which, between the two options, is your greater concern. These options might be dangers from the use of data or from the failure to use data.
Answer as many (or as few) two-option questions as you like…or add your own option! The more you tell us, the better we can understand the possible challenges of big health data together.
CrowdLaw is the practice of using technology to engage the public in the law and policymaking process.
The Governance Lab (The GovLab) at New York University uses data and technology to research and design innovative solutions that improve governance, strengthen democracy, and solve public problems.